PT-VWD updates reported to ISTH 2011: SSC-VWF
Aug 16 2011
Click here for an update http://www.isth.org/default/index.cfm/ssc1/2011-ssc-subcommittee-minutes/2011-von-willebrand-factor-minutes/
New to the site: PT-VWD Forum
April 8th 2011
Dear patients, clinicans, specialists, scientists and technologists with interest/ experience in PT-VWD: a forum has just been created on the site to act as a venue to exchange experiences and discuss all matter related to this bleeding disorder. Please register and offer your support by sharing yourknowledge and experience with PT-VWD
PT-VWD Project Full Results Now Published
(1) Laurentian University- St Lawrence College Collaborative Program, Kingston, Ontario, Canada; (2) Hemocentro UNICAMP, State University of Campinas,Brazil; (3) Pathology and Molecular Medicine, Queen’s university, Kingston, Ontario, Canada; (4) Hospital de Pediatría Prof. Dr. Juan P. Garrahan, Servicio de Hematología/Oncología, Argentina; (5) Service and Central Laboratory of Hematology, Centre Hospitalier Universitaire, Vaudois and University of Lausanne, Lausanne, Switzerland; (6) Department of Hematology and Coagulation, Sahlgrenska University Hospital, Sweden; (7) Department of Haematology, The Birmingham Children’s Hospital, Birmingham, UK; (8) Department of Haematology, Institute of Clinical Pathology and Medical Research (ICPMR), Westmead Hospital, New South Wales, Australia; (9) Department of Anatomy and Cell Biology, Queen’s University, Kingston, Ontario, Canada
Final Data from the PT-VWD Project at ISTH-SSC Cairo May 2010
June 10th 2010
The final results from a three years project searching for the rare bleeding disorder PT-VWD in addition to Updates on the PT-VWD registry were presented at the ISTH-56th SSC meeting in Cairo on May 24th 2010. The project is now finalized. The registry and search for the disease will continue. Publication is underway.
PT-VWD Registry and Worldwide Survey to be Discussed at the ISTH SSC- VWF Meeting
July 10th 09
The PT-VWD registry and results from a worldwide survey will be discussed at the Von Willebrand Factor SSC- bussiness session on Sunday July 12th 09 at 9:30- 12:00 , room 109 AB, Boston Convention & Exhibition Center, Boston, MA. This occurs as a part of the XXII Congress and the 55th Meeting of the Scientific and Standardization Committee of the International Society on Thrombosis and Haemostasis.
Canadian PT-VWD project Update at ISTH July 2009
April 30th 2009
Progress and update from the Canadian PT-VWD project will be discussed in the von Willebrand Disease oral Session at ISTH July 2009. http://www.isth2009.com
Title: CANADIAN PLATELET-TYPE VON WILLEBRAND DISEASE (PT-VWD) PROJECT: PROGRESS AND UPDATE
| Programme Number: |
OC-WE-134 |
| Session Title: |
von Willebrand Disease |
| Session Date and Time: |
Wednesday July 15 – 4:00PM – 5:00PM |
| Order |
2. presentation |
| Session Room: |
204 AB |
| Presenting Author: |
Maha Othman |
Results from PT-VWD Project Reported to ISTH-SSC on VWF, Vienna July 2008
October 26 2008
Data from the Canadian PT-VWD project was presented in the ISTH-SSC meeting on VWD on July 3-4 as a part of Updates on VWD registries. Click here to see minutes from the meeting
Preleminary Data from the Canadian PT-VWD project Presented in World Federation of Hemophilia Congress-Istanbul June 1-6 2008
May 30 2008
Preleminary data from the Canadian PT-VWD project is presented in the WFH congress Istanbul 1-6 2008
ISTH EQATH Program Distributes Information about the Canadian PT-VWD Project
April 16 2008
RCPA-QAP:
QMP-LS:
LEECH:
NASCOLA:
QMP-LS Distributes an Announcement Regarding the Canadian PT-VWD Project
March 15 2008
QMP-LS (Quality Mangament Program – Labaoratory Service) distributes an announcement regarding a project to investigate the occurrence of platelet type von Willebrand Disease (PT-VWD) and differential identification from the closely similar, type 2B VWD to laboratories performing von Willebrand investigations in Ontario, Canada