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New to the site: PT-VWD Forum
April 8th 2011
Dear patients, clinicans, specialists, scientists and technologists with interest/ experience in PT-VWD: a forum has just been created on the site to act as a venue to exchange experiences and discuss all matter related to this bleeding disorder. Please register and offer your support by sharing yourknowledge and experience with PT-VWD
PT-VWD Project Full Results Now Published
(1) Laurentian University- St Lawrence College Collaborative Program, Kingston, Ontario, Canada; (2) Hemocentro UNICAMP, State University of Campinas,Brazil; (3) Pathology and Molecular Medicine, Queen’s university, Kingston, Ontario, Canada; (4) Hospital de Pediatría Prof. Dr. Juan P. Garrahan, Servicio de Hematología/Oncología, Argentina; (5) Service and Central Laboratory of Hematology, Centre Hospitalier Universitaire, Vaudois and University of Lausanne, Lausanne, Switzerland; (6) Department of Hematology and Coagulation, Sahlgrenska University Hospital, Sweden; (7) Department of Haematology, The Birmingham Children’s Hospital, Birmingham, UK; (8) Department of Haematology, Institute of Clinical Pathology and Medical Research (ICPMR), Westmead Hospital, New South Wales, Australia; (9) Department of Anatomy and Cell Biology, Queen’s University, Kingston, Ontario, Canada
Final Data from the PT-VWD Project at ISTH-SSC Cairo May 2010
June 10th 2010
The final results from a three years project searching for the rare bleeding disorder PT-VWD in addition to Updates on the PT-VWD registry were presented at the ISTH-56th SSC meeting in Cairo on May 24th 2010. The project is now finalized. The registry and search for the disease will continue. Publication is underway.
PT-VWD Registry and Worldwide Survey to be Discussed at the ISTH SSC- VWF Meeting
July 10th 09
The PT-VWD registry and results from a worldwide survey will be discussed at the Von Willebrand Factor SSC- bussiness session on Sunday July 12th 09 at 9:30- 12:00 , room 109 AB, Boston Convention & Exhibition Center, Boston, MA. This occurs as a part of the XXII Congress and the 55th Meeting of the Scientific and Standardization Committee of the International Society on Thrombosis and Haemostasis.
Canadian PT-VWD project Update at ISTH July 2009
April 30th 2009
Progress and update from the Canadian PT-VWD project will be discussed in the von Willebrand Disease oral Session at ISTH July 2009. http://www.isth2009.com
Title: CANADIAN PLATELET-TYPE VON WILLEBRAND DISEASE (PT-VWD) PROJECT: PROGRESS AND UPDATE
| Programme Number: |
OC-WE-134 |
| Session Title: |
von Willebrand Disease |
| Session Date and Time: |
Wednesday July 15 – 4:00PM – 5:00PM |
| Order |
2. presentation |
| Session Room: |
204 AB |
| Presenting Author: |
Maha Othman |
Results from PT-VWD Project Reported to ISTH-SSC on VWF, Vienna July 2008
October 26 2008
Data from the Canadian PT-VWD project was presented in the ISTH-SSC meeting on VWD on July 3-4 as a part of Updates on VWD registries. Click here to see minutes from the meeting
Preleminary Data from the Canadian PT-VWD project Presented in World Federation of Hemophilia Congress-Istanbul June 1-6 2008
May 30 2008
Preleminary data from the Canadian PT-VWD project is presented in the WFH congress Istanbul 1-6 2008
ISTH EQATH Program Distributes Information about the Canadian PT-VWD Project
April 16 2008
RCPA-QAP:
QMP-LS:
LEECH:
NASCOLA:
QMP-LS Distributes an Announcement Regarding the Canadian PT-VWD Project
March 15 2008
QMP-LS (Quality Mangament Program – Labaoratory Service) distributes an announcement regarding a project to investigate the occurrence of platelet type von Willebrand Disease (PT-VWD) and differential identification from the closely similar, type 2B VWD to laboratories performing von Willebrand investigations in Ontario, Canada
Hemophilia Today Announces Participation in PT-VWD Project and Funds Renewal
April 15 2008
Hemophilia Today Announces Participation in the Platelet Type VWD Project and Canadian Hemophilia Society approved second year funding in its Spring 2008 Edition, Vol. 2.
Hemophilia Today is the official publicartion of the Canadian Hemophilia society.